President of “95”, Rare Alliance Greece, EUPATI Academy
Mary Adamopoulou holds a BA in English Language and Literature (NKUA) and an MA in English Lng Methodology. She has worked for more than 20 years as a teacher for the Greek Ministries of Education, Defense and Tourism, teaching English Terminology to adults. She speaks Greek, English and French.
After the belated diagnosis of a rare syndrome, Williams Syndrome, in her child, she joined the Volunteer Team of the Greek Alliance for Rare Diseases. She served as the Secretary General of the Board of Directors of PESPA until 2016.
In 2016, she graduated from the European Patients Academy (EUPATI). As an EUPATI Fellow, she advocates for patients’ rights and patients’ active role in the Healthcare system in order to improve Healthcare services, as well as rare patients’ quality of life.
She is a patient representative in EFGCP/paediatric medicines. She volunteers as a member of the committee for people with disabilities in her municipality. She is the President of the Patient Organisation “95” Rare Alliance Greece.
She has been trained on “Decentralised Patient-Centric Clinical Trials Course” by ECCRT (European Centre for Clinical Research Training), the “Eurordis Leadership School” and Scotwork Advancing Negotiation Skills.